Showing posts with label ptls and filshie clips. Show all posts
Showing posts with label ptls and filshie clips. Show all posts

Tuesday, May 17, 2011

All Tied Up: Selling Sterilization

Here is an article that I wrote for Associated Content.  Thought I would share it with everyone.


Over 43 million women in the U.S. today are using contraception, 27% of those rely on surgical sterilization as a permanent form of birth control. Many women are sold on this procedure by their gynecologists, girlfriends, family or are simply pressured into it by a partner than feels strongly about it.   Statistics show that half of all women ages 40-44 have been sterilized.  Sterilization is pushed primarily toward women who are 35 or older, married, with two or more children, and with incomes that fall below the poverty level.  The biggest issue to face women concerning sterilization is not about choice, but rather one of informed consent, and whether or not women are being given all the information they need to make a truly informed decision.  Unfortunately, doctors often trivialize the possible complications and thereby make the side effects of tubal ligation invisible.

Brochures on sterilization misrepresent tubal ligation with subtle terms that lessen the severity of the procedure.   After all, it’s all about how it is presented. Words can have emotional connotations and the medical community does not want to scare women by using the terminology that might give light to the procedure that is actually occurring. The understatement of bodily information makes tubal ligation seem like a simple contraceptive method. It also makes women believe that it is not as invasive and physically mutilating as the operation actually is. Gynecological texts are not neutral with their language.  They accurately explain that the surgery crushes a portion of the tube and kills the tissue that surrounds it.  Medical texts discussing electro coagulation  describe the fallopian tubes as smoking, swelling, and finally popping when the tube has been damaged enough to tear away a segment. Other texts say that “complete vascular obliteration” must be assured.  In other words, cutting off the blood flow to the tissues and surrounding area.  Would women agree to surgery if the text read “crushing, smoking, swelling, popping and obliteration”?  They might stop to consider the surgery more carefully if they were fully aware that cutting off blood flow to the ovaries is nothing less than female castration. 

Most brochures give a brief explanation of reproduction followed by a very basic description of the surgery. Words such as “closed”, “blocked”, “clamped” or “tied”, make it sound like reversing it would be as easy as “unblocking”, “unclamping” and “untying”.  Some doctors even promote certain types of tubal ligation as more “reversible” than others.  The current worst offender is the Filshie Clip, made by Cooper Surgical, that promotes in their patient literature that, “Reversal of Sterilization is Possible!”  Yet these clips work not only by blocking the tubes, but by causing inflammation and scar tissue that could likely make any hope for reversal impossible.  Just the discussion of reversal by a doctor, or in a pamphlet makes women disregard the permanence of the procedure and sets up the idea that the operation is semi-permanent. 

Sterilization reversal, or tubal reversal, is not a simple procedure, but requires major surgery by someone who is skilled in microsurgical repair of the fallopian tubes.  Studies show that over 25% of women who chose sterilization would like to have a reversal.  The actual numbers of reversal, however, are about ten percent of all tubal ligations.  The lower numbers of tubal reversal reflect both the cost and the difficulty.  Even if the reversal is a success, most women still have to use fertility treatments to become pregnant due to reduced ovarian function.  A study in 1994 (Hakverdi) showed ovarian deficiency after 12 months in 60% of women, and 30% stopped ovulating all together.  So even though tubes can be opened, hormonal deficiencies keep the ovaries from making eggs and generally reduce any possibility of pregnancy. 

The seriousness of tubal ligation is also negated in the literature.  Laparoscopic sterilization is sold as “quick”, “simple” and a “band aid” operation.  After all, if it only requires a band aid on the outside, it must be no big deal right?  Depending on the technique used, between 800 and 2,000 women out of every 100,000 will have a major complication at the time of the operation, according to the Guttmacher Institute. But the safety of sterilization is measured by how many women are subsequently admitted to the hospital for complications after the procedure.  What gets swept under the rug are women who end up at the gynecologist office complaining of pain, discomfort and menstrual problems.  These problems go unrecorded and are often dismissed as minor.  Women are left to deal with the effects of their sterilization on their own.  They are told the side effects are all in their heads, and are offered birth control pills and anti depressants to “deal with” their symptoms.  This silences the collective voices of women’s experiences of pain and discomfort and allows sterilization to be continually seen as a safe and simple procedure.

There are many documented side effects of having a tubal ligation and these have become know collectively as Post Tubal Ligation Syndrome:

1)      40%  more menstrual blood loss (Lawson, Cole, Templeton, 1975)
2)      Pelvic pain, especially with clip and ring methods (Lawson, Cole and Templeton, 1975)
3)      40% increase in irregular menstrual patterns (Tappan, 1973)
4)      Ovarian dysfunction (Alvarez-Sanchez, 1981)
5)      Lower progesterone levels (Sumiala, Tuominen, 1986)
6)      Early onset menopause due to damaged ovarian blood flow (Alvarez-Sanchez, 1981)
7)      3-4 times more likely to need a hysterectomy, and that doubled for women who were under 25 years when sterilized (Shy, 1992)
8)      Mood disorders and depression caused by hormonal imbalance; increase in suicidal thoughts (Wyshake, 2004)
9)      Loss of libido, or sex drive in 44% of women (Philliber, Philliber, 1985)
10)   Increased risk of ectopic pregnancy to 7% or more compared to 1% of the population.
11)   Bladder or bowel puncture, or other tissue damage during procedure. (Harlap and Kost, 1991)
12)   49% suffer heavy periods and 35% suffer more menstrual cramping (Wilcox, 1990)
13)   Risk of cervical cancer at 3.5 times the normal rate (Wilcox, 1990)
14)   Increased risk of spinal fractures and osteoporosis (Wyshak, 2005)
15)   Lowered milk supply if done during the post partum period (Vytiska, 1989)
16)   Hot flashes, Night sweats, and flushing (Wyshak, 2004)
17)   Lower abdominal pain experienced by 35% of women (Smith, Lyons, 2010)

These are just the effects that are currently documented.  Women suffering from PTLS have a much longer list of symptoms than have not been studied in the medical community.  What is concerning is that many of these side effects have been know since 1975, and yet are still discounted by the medical community.

How can women give a truly informed consent when doctors are still perpetuating a mythical account of sterilization as a quick, easy, simple, procedure that enhances sex drive?  The pain and discomfort from this procedure is so downplayed that women are often caught off guard, and are left feeling scared, confused and angry that they were not told how much damage was going to be caused to their health.

Sterilization is sold to women by playing on the fear of pregnancy, and encouraging them to alter their bodies to “protect” themselves.  They are told that by removing the threat of pregnancy that they will enhance their sex lives.  But sterilization does not remove tiny children needing your care, nor does it make up for the exhaustion from working all day, nor will it improve an existing relationship.  Many studies have looked at sexual satisfaction in terms of frequency.  The implication is that more sex means better sex, but from a woman’s point of view this may not be so.  44% of women experience decreased sexual desire after tubal ligation. (Phillber and Philliber, 1985) Since many women experience heavy and prolonged bleeding, and/or abdominal pain, this can put a serious stop to the uninhibited sex that they were promised.  Many women can’t even get help from their doctors until they tell them that the pain and bleeding is ruining their sex life.

If you are considering sterilization for yourself, or discussing it with your partner, please take into consideration the possible ramifications that the surgery will have.  The fallopian tubes are not just “tubes” but a hormonal conduit between the ovaries and the uterus that can greatly alter a woman’s physiology if damaged.  The potential for mental and psychological side effects are much greater than is explained by doctors and literature.  Consider all of your options of reversible contraception before making a body altering decision that could result in irreversible damage.

Saturday, April 2, 2011

Filshie Clips are a Pain in the Tubes!

Ok, so I want to talk a little bit about the type of ligation that I had, which are filshie clips.  First of all, let me say that this is my opinion, and my blog, so I'll say what I want. 

I think they suck.  I know that most TR doctors will tell you that they are the easiest to reverse.  Ok.  Score one for the filshie clips.  But do you really want a foreign object inside of you?  I didn't.  Here's my story about my filshie clips. 

When I had my tubal ligation done, I was adamant that I didn't want anything left inside of me.  My tubes were supposed to be done by the pomeroy method.  (See types of ligations page)  What I got instead were filshie clips.  These, in my humble opinion, are the dumbest idea anyone could have come up with.  These clips are made from titanium and they have a silicone lining. They are roughly a half an inch long and an eighth of an inch wide. 



This is probably closer than you would ever want to see them.  But now you know what they look like.

Fishie Clips are put on laproscopically, or during the time of a csection delivery.  They are honored as the gold standard because they are quick and efficient.  There's just one tiny problem with them.   They hurt.  Our insides were meant to be soft and fluid.  Our organs move as we move, swaying gently.  These clips are now left inside, on our fallopian tubes, next to our uterus where they poke and prod and cause pain.  Anyone who says that this is impossible probably has a penis, or at least doesn't have clips.  Many doctors have gone so far to say that women only feel pain from the filshie clips, because they know that they are there.  It is another version of the "its all in your head" song that women hear about PTLS.  But I didn't know they were there.  I found myself in intense pain, especially on my right side.  It started immediately as the pain meds began to wear off in the recovery room.  I was worried that a stitch had come off, or that something else other than my tube was  burnt.  I asked and was told that was not possible.  (But not why that was not possible)

So, my life moved on and I waited for my pain to stop, but it didn't.  It throbbed where the clips were, not so much on the left, but horribly on the right.  It would actually swell up on the right side and it would look like I had a marble under my skin.  I was so afraid that I was living with an untreated infection.  I did the responsible thing and went back to the doctor.  (See My Story of PTLS)  When I finally found out I had the clips it all made sense to me.  It totally felt like I had a foreign object inside of me.  When you pressed on that point I would scream out.  It hurt to sit, to walk, to carry my children.  It hurt to sleep on the right side (which was my favorite spot), and worst of all, it hurt during sex.  The whole point in having my tubes tied was for the sex.  (Just being honest!)  The only time it didn't hurt was when I laid flat on my back.  At night my husband didn't get the wife who wanted sex, he got the wife who wanted to lay still with an icepack on her abdomen. 

Once I found out about the filshie clips from obtaining my operative report, I began to tell my doctors that I thought they were causing my pain.  The second gyno said that it was a common complaint of those that had filshie clips and she would be glad to take out my fallopian tubes.  What???  I wasn't really into curing my pain by causing more damage.  So I turned back to the internet, and to the CHTR website (see my list of doctors) and found so many other women who had the clips and had the same pain.  (They also had ptls, but right now I am just focusing on the pain.)

So, its not just me.  Here's what other women have said:

I am 30 yrs old, a mother of 3; ages 10, 3, and 18 months.  Six weeks after the birth of my third child I had a bilateral tubal occlusion with filshie clips done.  This was April of '09.  I started having pain immediately following the surgery.  It felt like my ovaries were going to burst all the time and that my tubes were being squeezed.   I had the filshie clips removed 10 days ago and in less than 24 hours I noticed a big difference.  I think my body was trying to fight the clips.  For the last 10 months or so I have been waking up with my whole body in pain.  It got worse and worse.  It was getting to be a struggle to get out of bed every day because of the achiness.  EVERY DAY I felt like I had been hit by a bus the day before.  My legs hurt, joints ached, and just felt terrible in general.  I also run about 4 miles a day.  I thought the achiness was either from running or just getting older.  Well the day after my surgery I woke up feeling perfectly fine.  It never even crossed my mind until then that those clips were causing my body to hurt.  As I said, I am ten days post op and have not felt the slightest bit achy since.  How weird is that?

Or how about this one:

  I had a tubal done in August of 2006 and started having mysterious pelvic, abdominal, rib/back pain that continued to worsen.  (I did not know that filshie clips were used in my tubal procedure). The mysterious pain went on for years...because the drs just could not figure out why I had pain they suggested that I have my gall bladder removed - which I did in Feb 2009 (even though I did not have stones and I passed every test/scan).  I continued to go downhill all of last year, and by November I was laying down at every chance.  I went to a number of drs who came up with all kids of ideas: they thought I had nerve pain "left over" from the gall bladder operation, or fibromyalgia, or depression, or IBS and I kept telling all of them NONE of those things "fit".  I finally found a dr who was willing to listen to me and was willing to do surgery to take a look around.  She took out the clips and I no longer have pelvic pain or rib pain!! Those clips were rubbing on my abdominal wall and there is no doubt my body was NOT happy.  I would have never approved ANYTHING being left in me (knotting and cauterizing the tubes was plenty sufficient!)  I have lost a lot of faith in drs and health care in this process, not to mention thousands of dollars in co-pays to reach out of pocket maximums!  Had I been given a CHOICE or warned about the use of them, I might not have spend the last 4 years of my life struggling with pain and fatigue!  

Or this one:

I had the filshie clips put on approx. 2 years ago. Since then I have had constant pain in my lower right and left hand side below my navel and constant bloating. An ultrasound proved nothing was wrong. I then had bleeding in between my menstrual cycle. My gyno decided to do exploratory surgery. It was found that the clips had caused massive adhesions and they were removed at once. Now three days after the surgery I have never felt better. To say the problem is rare, I dont know after reading through the posts it seems to be a bit of a regular occurrence???? Maybe more studies need to be conducted after all.  I now have been recommended to have a hysterectomy due to the damage that has been done.


So, see it's not just me!  Actually you can find so many posts if you look up the search "filshie clips and pain" or "filshie clip removal".  The biggest problem is the pain is in addition to the suffering caused by PTLS.  If I had just had pain from the filshie clips, I would have sought a reversal.  If I just had the symptoms of PTLS, then I would have had the reversal.  But the two combined made me want to die.  And to go to the doctor and have them tell you that it is all in your head is so incredibly wrong. 

The last thing I want to tell you about filshie clips is that they migrate.  Yes, that means move.  Apparently, after the tissue in the clip dies, the clip can come loose and float or migrate around the body.  We are told that this is OK because they are designed to stay in the body indefinitely.  I don't know about you, but for someone who didn't want clips in the first place, I really don't want them if they are going to move around.    Here, see for yourself:


Figure 1

Notice there are two clips on the left hand side of the pelvis.  Hmmmm.....shouldn't there be one on the left, and one on the right?  Not if the right one fell off and is floating around.  There have been other reports of women who had filshie clips come out of their vagina, anus, or end up in their bladder, stomach, spleen or appendix.  That doesn't sound like fun.  My gyno admitted that the last time she did a hysterectomy, the woman had a filshie clip embedded in the side of her uterus.  Hmmmm....could that have caused pain?  It is estimated that this type of migration occurs in 25% of patients.  And doctors who perform tubal reversals say that one or more clips are missing roughly 30% of the time.  Don't you think that women should be told this information before agreeing to filshie clip sterilization?  (I will provide a link at the bottom if you want to read my source) 

So, today as I sit here and type this I can't help but be grateful that the doctor was able to find both of my clips.  I even got to keep them.  You would be amazed at how big they are in your hands, and how rough they are to the touch.  I am so glad to be rid of the pain in my side as well as my ptls symptoms.  If you have filshie clips and are considering removing them due to pain, then I say go for it.  You'll feel better.  I do!

http://www.annals.edu.sg/PDF/37VolNo5May2008/V37N5p438.pdf
Link to Filshie Clip Migration Info